I never thought I'd be a caregiver at Christmas, but it happened to us when our girls were young. Without the help of family, friends, and strangers, we would have had a rough holiday. #caregiver #familycaregivermonth #Christmas #angel #gifts #cancer #selfcare #holiday #giving

I never thought I’d be a caregiver at Christmas, but it happened to us when our girls were young. Without the help of family, friends, and strangers, we would have had a rough holiday.

November marks another National Family Caregivers Month, a time to recognize, support, and listen to family caregivers. Everyone talks about a cancer journey, or the toll the aging process takes on our nation. But this month we want to celebrate, listen to, and find new ways to celebrate the family caregivers in our midst. Each Sunday of November you’ll heart from a different family caregiver on ways to avoid burnout, care for oneself, or make crucial decisions. You can also listen to the Self-Care Hacks podcast for interviews with family caregivers.

I never thought I'd be a caregiver at Christmas, but it happened to us when our girls were young. Without the help of family, friends, and strangers, we would have had a rough holiday. #caregiver #familycaregivermonth #Christmas #angel #gifts #cancer #selfcare #holiday #giving

When the Holidays Find You in a Hospital

“Guess what we did today?” Sarah’s voice bubbled with excitement.

“Tell me,” I answered, holding the phone close to my ear to block out the sounds of the nurses taking Pedro’s vitals.

“We went on our Christmas tree hunt!”

“No way,” I enthused. “You didn’t cut down a tree in the backyard, did you?”

“Silly Mommy,” Sarah laughed. “Of course not! Mor mor and Poppy took us!”

“How cool is that?”  

“And guess what else?”

“You had to chop down the tree all by yourself? I think the axe weighs more than you do!”

“No. Poppy chopped the big tree down,” she said. “But I got to cut one down, too. My very own tree for my bedroom!”

“No way!”

I could hear Laura’s voice in the background. “Tell her I cut one, too!”

“It sounds like you had a wonderful day.” I struggled to keep the wistfulness out of my voice. We’d had a family tree-hunting tradition since the girls could walk. Each year, we’d purchased a Forest Service permit and went on search of adventure the first weekend in December.

Invariably, we got stuck in the snow at least once (Pedro’s favorite part of the adventure). We also had hot chocolate (Laura’s favorite part), sledding (Sarah’s favorite part), and laughter mixed with pine trees (my favorite part).

But this year, my parents had stepped in to carry on the family tradition. I swallowed down my emotions—a mix of nostalgia and gratefulness—and asked, “Did Mor mor remember the hot chocolate?”

“She did,” Sarah assured me, “and we had lefse, too.”

“What a feast,” I said, the smells and sounds of Christmas Tree Hunts past swirling around me, blocking out the antiseptic hospital smell.

But Would there be Presents?

“When will you be home?” her voice sounded wistful.

“Soon, I hope.” I breathed out a silent sigh. “It’s taking the doctors a long time to get all the stem cells they need.”

I heard a little sigh on the other end of the phone.

“The minute they tell us they have enough stem cells I’ll buy plane ticket home!” I injected my voice with enthusiasm and hope.

“And then we can decorate the Christmas tree!” she squealed.

“And put out the presents,” Laura’s big-sister voice reminded.

“Absolutely. The presents,” I said. Presents. There might not be many of those this year. A blizzard of 50-page hospital bills had started arriving at a pace we couldn’t keep up with. Even with top-of-the-line insurance through my employer, we could barely pay for all the expenses of fighting cancer.

I forced the maudlin thoughts from my mind and finished chatting with our girls. No need to dwell on the impossible, I needed to keep hope alive.

A Caregiver at Christmas

Every time I heard “It’s the most wonderful time of the year,” come through speakers at the mall or a store, my heart sank, and a vice of dread squeezed air out of my lungs. How would I ever keep Christmas wonderful with our little family separated by distance and illness in the weeks leading up to the day?

No baking cookies for the neighbors. And Christmas shopping and craft-making for homemade gifts? Impossible. I couldn’t relate to anything in the song. If Pedro could only produce enough stem cells, we’d have a wonder, for sure. And having the four of us home together for Christmas would be beyond wonderful.

If you’ve ever cared for a family member through the holidays, maybe you can relate. Maybe you’ve mourned Christmases past and worried about Christmas presents. Perhaps you’ve felt your stress burying you beneath blizzard of what ifs and if onlys. You have permission to kick guilt in the gut and scale-down on your (and everyone else’s) expectations.

Hacks for Caregivers at Christmas

1. Have an honest conversation with your family about expectations. Let everyone in the family choose one easy tradition or small activity to participate in.

I never thought I'd be a caregiver at Christmas, but it happened to us when our girls were young. Without the help of family, friends, and strangers, we would have had a rough holiday. #caregiver #familycaregivermonth #Christmas #angel #gifts #cancer #selfcare #holiday #giving

Depending on the age of the family member, allow each person as much autonomy and responsibility as possible. If Danny wants to make Christmas cookies, let him choose the recipe, find an adult (or older sibling) to help out, and orchestrate the event. No one needs to keep up with someone from a magazine.

2. Focus on the most important part of Christmas—Jesus. If Christmas is a day to celebrate the birth of Jesus, make sure everyone stays focused on the goal.

Decorate a jar (or don’t, after all, you’re a caregiver) and have each family member write down a gift they would like to give Jesus. For example, someone may want to give Jesus more of their time. Another family member may want to give Jesus their worries.

Take time to talk about the gifts and how each family member will go about giving their gift. Set the jar aside until the next Christmas, when you can read over the gifts and have another conversation about how it felt to give.

3. Give yourself the gift of self-care. If you haven’t already started taking care of yourself, now is a great time to start. Healthy self-care helps us handle stress, and with the extra burden of Christmas stress, you need self-care now more than ever.

Hacks for Helping a Caregiver at Christmas

If you know someone caring for a family member over the holidays, maybe you had no idea just how hard the holiday season can be for a family caregiver.

How Can You Help a Caregiver at Christmas?

Tips for helping out a caregiver who cares for a housebound or neutropenic loved one:

1. Buy them a Christmas tree.

Caregivers don’t have the time, energy or money go tree hunting. Make sure you help them set it up, too. Check beforehand, in case the doctors have ordered no live trees.

2. Organize a stocking stuffing.

If the caregiver has children, organize a group to buy and stuff stockings for the kids. Deliver them to the caregiver far enough in advance so the caregiver won’t worry about doing it themselves.

3. Stuff a stocking with things a caregiver could use.

Caregivers can always use hand lotion, germ killer, travel sizes of Kleenex, shampoo and conditioner—whatever you think might make the caregiver you care about feel loved.

4. Bake something healthy for them.

Find out if the caregiver or the one they’re caring for has any health restrictions, and then bake some cookies (use whole-wheat flour instead of white, brown or raw sugar instead of white) or other treats. (Here’s a helpful link about patients with neutropenia and what they can eat).

5. Offer to put up Christmas lights outside the house.

If you aren’t comfortable climbing ladders, decorate shrubbery or tree trunks—anything to let the caregiver know you care about their happiness.

6. Gift cards.

Give gift cards that the caregiver can use or pass on to someone else as a Christmas gift. This will help ease the caregiver’s financial stress. Trust me, I wasn’t joking about the 50-page hospital bills.

7. Offer to prepare a holiday meal.

Organize a holiday meal with a group of friends for a caregiver and her family. Ask in advance, and check for dietary restrictions before you start planning. The caregiver may have cherished family recipes they’d love to serve, but don’t have time to prepare.

8. Take the kids.

Invite a caregiver’s children out for sledding, ice-skating, or any fun activity. Any caregiver with children will appreciate a few hours of down time during the holidays—especially when regular routines get interrupted by school vacations.

If the caregiver you care about celebrates Chanukah or Kwanza instead of Christmas, take the time to find out how you can help them through their holiday.

Home for Christmas

Pedro probably still holds the record at UCSF (University of California San Francisco) 11 Long cancer ward for the longest stem-cell harvest ever. I can’t remember how many days he had to return to the hospital for pheresis, but instead of the two or three days they promised, it stretched into weeks.

I never thought I'd be a caregiver at Christmas, but it happened to us when our girls were young. Without the help of family, friends, and strangers, we would have had a rough holiday. #caregiver #familycaregivermonth #Christmas #angel #gifts #cancer #selfcare #holiday #giving

Four days before Christmas my cell phone rang late in the afternoon.

“We’ve finally collected enough stem cells, ya’ll can go home!” The nurse sounded as happy as I felt.

I bought tickets and we made it home to decorate the tree before Christmas day. Without the kindness of family, friends, and strangers, we wouldn’t have had a tree, gifts, or the money to get home.

It took a village to reunite us and help us celebrate that year. I’ll never forget the kindness that turned our Christmas into a season of joy and miracles. You can be part of someone’s village, too.

Check out the Self-Care Hacks Podcast!

Yep, there’s a podcast now! You can listen on iTunes, Stitcher, IHeart Radio, Amazon, and more.

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38 Comments

  1. This is such a wonderful post. 2 years ago, after major surgery that caused partial paralysis to my husband, my college age son and I were his caregivers. We were so exhausted since we had to do everything for him, even brushing his teeth. We were blessed by an older couple who brought a Christmas meal to have with us. I wish others had also reached out to help with meals, etc.
    Priya recently posted…Quick & Easy Chicken Noodle SoupMy Profile

  2. Anita,
    Amazing how a health crisis during the holidays can boil it down to the basics. These are such great reminders and tangible helps that we can all do. Your post has urged me to offer to share our Thanksgiving meal with our neighbors (wife is battling pancreatic cancer). Have a peace-filled Thanksgiving.
    Blessings,
    Bev xx
    Bev @ Walking Well With God recently posted…Heaven’s Looking Better and Better with Each Passing DayMy Profile

  3. Wow–that must have been a crazy Christmas. But you put your experience to good use even now by sharing with us. I haven’t lived through such harrowing medical times so it’s good to hear from someone who has. I want to be more mindful of any friends or loved ones I have who who are trying to get through the holidays under such hard conditions. Thanks, Anita!
    Lisa notes recently posted…How Can We Come Together If We Stay Far Apart?My Profile

  4. Thank you for these wonderful tips, Anita. I want to be part of that village who helps a struggling family at Christmas. The holidays are wonderful but expectations can sometimes weigh heavy on families in crisis. I think we sometimes just don’t know how to help. These hacks will help us to help them.
    Laurie recently posted…My Word Of the YearMy Profile

  5. Great ideas. The caregiver often has to much on their plate to add even more things. Someone reaching out to help can mean more than you think. And when no one does reach out to help, the sick and caregiver can feel like they are all alone. May we be people who reach out to help others.

  6. Anita, hi. After releasing my mom to a nursing care facility six weeks ago, I can only say amen to your practical, oh so smart suggestions. Even if you’re not caregiving 24 / 7, the emotional load is tremendous.

    And while I feel great relief that she’s getting the care she needs and all the attention she deserves, I miss her so. I’ve only seen her 3 times since I kisses her good-bye at the door.
    Linda Stoll recently posted…On the Porch * Red Berries EditionMy Profile

  7. Anita, I love your heart for encouraging others. We took our kiddos trick-or-treating at two retirement homes this Halloween. The communities had stations set up outside (i.e., outside the resident’s windows), so social distancing was enforced 🙂

    Our kiddos had a blast, and it was fun to see the residents’ faces light up. Thank you for the reminder that we need to find a way to reach out over Thanksgiving and Christmas too.

    Oh, and thank you again for another awesome link-up!
    Jed recently posted…Happy Friday Blog Share #1My Profile

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Anita Ojeda

Anita Ojeda juggles writing with teaching high school English and history. When she's not lurking in odd places looking for rare birds, you can find her camping with her kids, adventuring with her husband or mountain biking with her students.

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